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Table 4 Categories and codes identified (interviews)

From: Adolescents’ social needs living with juvenile idiopathic arthritis and their views about digital resources

Categories Codes %* Examples
Friendship and pain interference Satisfaction with their friendships 78.57 “If I tell them what’s going on, they usually help me, and yes, the truth is that I think we can talk about almost anything …” [Boy, 14 years]
Something to improve about friendships 21.43 “… it would increase trust.” [Girl, 14 years]
Performing physical activities 57.14 “If I see that they might tell me we’re going to walk to the other side of the city, I might walk a while and then get the bus or just take the bus, or I don’t know …” [Girl, 15 years]
Feelings about friendship and JIA Feeling different 57.14 “I felt physically different when I was medicated, I mean, I was really bloated because of the illness and really bloated because of the medication …” [Girl, 14 years]
Feeling criticized by peers 35.71 “One of my classmates 1 day called me -fat ankles- and said that I was pretending...” [Girl, 12 years old]
Not feeling believed 35.71 “I have had to learn to be patient with people … because not everyone believes it …” [Girl, 14 years]
Not feeling understood 28.57 “...they don’t understand... and they don’t ask me because they don’t dare. They know I have something, but they don’t know what it is...” [Girl, 15 years old]
How they socially cope with JIA Self-disclosing that they have JIA 78.57 “I think I don’t have anything to keep to myself, that is, I can say everything, and with my friends, I don’t care whether I tell them or not. … Well, if a new kid comes, I won’t go and tell him –Hey, I have arthritis-, but if the topic comes up, I will tell him … I’m not embarrassed either or anything like that … Most of them are friends from a long time ago, and they already know about it, and so they don’t even ask … If they are interested, I explain it to them, if it’s like – Why don’t you do gym?- I tell them for no reason and that’s that.”
[Girl, 13 years]
Using communication skills 42.86 “I usually try to reason with them and explain to them that this isn’t acting, that I would not use the disease to be dramatic, that this is something serious.” [Girl, 14 years]
Maintaining activities with friends 35.71 “If I am, for example, in the discotheque, well I sit down, and even though sometimes they say –No, I’ll stay with you.- and I say –No, you go and follow, I don’t mind- And if I see that I feel better, I follow. But … I try to stop a little, and when I see that I am getting better, well, I go on, even if I’m a little weaker.” [Girl, 15 years]
Minimize pain
Ignore negative comments
“…. But we don’t usually start to talk like … -It hurts and I sit down … -. No, it’s like, it hurts and continue on.” [Girl, 14 years]
“I usually ignore them and say –you know it hurts, you don’t have to pay attention to them-” [Girl, 14 years]
Laugh at pain 14.29 “When I’m in class and I have pain on my leg and I cry out - pulled muscle!- And then they look at me and laugh and I joke because I’m already used to it.” [Girl, 15 years old]
Offering a benefit 14.29 “Sometimes I say -Well, my parents pick me up with car- and I invite some friend who lives nearby to come with me by car.” [Girl, 15 years old]
Needs to better socially cope with JIA Information 28.57 “… because at the beginning, they only said –the pain is like that but we don’t know why- if they had said that it would keep me from doing things, well I would have accepted gradually, and not all of a sudden, that I would have to stop dancing.” [Girl, 15 years]
Physical Help 21.43 “When I’m in the middle of a flare-up, I mean, when I’m bloated or having a flare-up, they have to help me to climb the stairs sometimes, even though it seems stupid …” [Girl, 14 years]
Friends not feeling sorry for them 21.43 “… but it’s like, it’s not that it affects me a lot, but I prefer that they don’t say –Poor thing- because it’s something that doesn’t affect me very much and there are people who are suffering a lot more than I am, and they really are poor things, so to speak.” [Girl, 13 years]
ICT use and perceptions about an online resource for JIA Access using a smartphone 92.86  
Speaking with friends 64.29  
Searching for information 42.86  
Watching films, series or listening to music 35.71  
Playing 21.43  
Using social networks 85.71  
  Usefulness of an online resource for JIA 100 “It’s pretty interesting because it has to help you a lot and, well, even though you don’t have them (friendship problems) it will always help you in some way, I suppose, the truth is that it can be really good.” [Boy, 14 years]
Characteristics of an online resource for JIA Include general information 64.29 “As advice, a person who gives advice to others, well, about the topic of friends, or changes in mood, pain … and all those things, and so that person, they can help a lot, to know what to do or what’s wrong with her …” [Girl, 12 years]
Interactions with other teens with JIA 50  
Interactions with someone experienced 64.29  
Health professionals should be involved 57.14 “Doctors or a psychologist or someone like that who has experience or knows about that.” [Girl, 12 years]
People without experience should be involved 28.57  
Chat 28.57  
Forum 21.43  
Web/blog 14.28