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Table 2 Total expenditure per direct resource according to the social profile of patients with SLE (N = 300)

From: Characterization of the patterns of care, access, and direct cost of systemic lupus erythematosus in Brazil: findings from the Macunaíma study

Variable, n (%)

Medicine

(median [IQR])

Consultation (median [IQR])

Exams

(median [IQR])

Hospitalization

(median [IQR])

Home adaptation (median [IQR])

Transportation (median [IQR])

Healthcare providers (median [IQR])

Caregiver

(median [IQR])

Total cost, per patient/ per year (median [IQR])

Did you stop schooling due to SLE?

No, 216 (72.0)

847.3

[389.9, 3595.7]

34.7

[23.1, 52.0]

117.8

[71.7, 189.0]

1007.7

[379.3, 2447.1]

23.6

[14.2, 66.0]

9.4

[5.4, 18.9]

1037.7

[283.0, 1952.8]

117.9

[31.2, 233.5]

1305.4

[610.4, 4115.4]

Yes, and did not return, 46 (15.3)

1194.9

[597.8, 4529.3]

45.2

[23.1, 69.3]

133.2

[58.0, 219.0]

861.4

[506.3, 2436.4]

35.4

[18.0, 76.7]

9.4

[5.7, 32.2]

283.0

[283.0, 636.8]

235.8

[153.3, 382.1]

2323.9

[863.8, 5453.2]

Yes, but returned, 38 (12.6)

1749.2

[541.7, 5305.0]

43.3

[28.9, 62.1]

154.6

[116.4, 221.5]

806.6

[615.1, 1646.3]

35.4

[28.3, 41.5]

9.4

[4.8, 17.0]

1250.0

[1049.5, 1450.5]

18.9

[16.5, 21.2]

2264.4

[1193.5, 5982.4]

p-value

0.037

0.151

0.076

0.966

0.943

0.457

0.488

0.158

0.008

Employment

Retired or sick leave due to SLE, 100 (33.3)

1269.4

[683.0, 4190.0]

43.3

[28.9, 75.1]

132.1

[74.3, 216.4]

578.8

[324.2, 1885.9]

35.4

[14.2, 49.5]

9.4

[9.0, 23.3]

283.0

[226.4, 955.2]

70.8

[41.3, 202.8]

2148.3

[1015.8, 5356.3]

Active, 79 (26.3)

907.9

[344.9, 4312.7]

28.9

[23.1, 46.2]

119.5

[67.9, 163.8]

377.4

[342.8, 1106.7]

18.9

[14.2, 29.5]

9.4

[4.8, 17.6]

849.1

[566.0, 1132.1]

20.0

[15.3, 88.4]

1289.1

[558.0, 4545.1]

Unemployed, 65 (21.6)

590.7

[328.0, 1902.9]

37.7

[25.9, 52.0]

150.1

[79.5, 207.7]

1446.5

[739.6, 3329.9]

37.7

[21.2, 110.8]

9.0

[3.5, 18.4]

849.1

[176.9, 1556.6]

412.7

[180.4, 737.0]

1694.4

[628.0, 4186.0]

Others, 56 (18.6)

718.2

[467.2, 3083.2]

37.6

[23.1, 63.6]

117.5

[79.0, 189.2]

1464.0

[455.8, 1986.4]

94.3

[94.3, 94.3]

9.4

[5.2, 18.3]

3396.2

[1132.1, 3396.2]

112.0

[73.7, 150.4]

1111.0

[640.3, 4479.2]

p-value

0.005

0.006

0.251

0.155

0.423

0.068

0.08

0.374

0.032

  1. IQR, interquartile range; SLE, systemic lupus erythematosus